Trichotillomania and BFRB Retreat Information

Hi Everyone, 

I wanted to pass along this information in the event that any of you are able to travel to, or currently live in the Colorado area. Working alongside others with Trichotillomania is so helpful in recovery. Lots of love to you all! XOXO

Andrea

www.WigStudio1.com

TLC (Trichotillomania Learning Center) is delighted to pass along news to you from our founder, Christina Pearson, who is now CEO and Director of the Heart and Soul Academy for BFRB Living Skills

Christina will be hosting a BFRB Retreat, September 10-13, in the spirit of the retreats that she created and led for TLC (Trichotillomania Learning Center) for over 20 years. 

Please keep reading for more details on this event!

The Annual Body Focused Repetitive Behaviors (BFRBs) Retreat is an intensely powerful, deeply supportive event held specifically for those who are struggling with Trichotillomania (Hair Pulling Disorder) or Dermatillomania (Skin Picking Disorder) and their loved ones.  Being held in September high in the Colorado Rockies at Snow Mountain Ranch, attending the Retreat offers a rare opportunity to learn new perspectives, practice new strategies, and heal (both inner & outer!) - while spending time with some of the BFRB field's most knowledgeable, compassionate, and skilled treatment providers and facilitators in the world.

Set in a rural, beautiful setting, this year's Retreat is a must-attend event for anyone struggling with hair pulling, skin picking, or other related behaviors, their parents, spouses and loved ones. The Retreat Registration fee covers Lodging, meals, and workshops.  

Offering over 50 workshops, the Retreat offers tracks for kids, teens, adults, parents/partners/spouses, covering subjects such as: 

  • How to Build a Personalized Cognitive Behavioral Recovery Roadmap  using ComB*
  • Mindfulness Based Impulse  Reduction for Skin Picking (Separate Session for Hair Pulling)
  • Biology of BFRBs: Current Knowledge
  • The Shedding of Shame
  • Building a Better Toolbox for Kids
  • Addressing the Whole Person for Teens
  • How to Deal with Bullying at School
  • Sharing Stories to Heal Hearts
  • Self-care with Centering Prayer and Restorative Yoga
  • Parenting Skills for a Child with BFRBs

This will be the 22nd Annual Retreat facilitated by Christina Pearson, the woman who founded TLC in 1990 and is now CEO & Director of the Heart and Soul Academy for BFRB Living Skills. With over two decades of personal recovery from both picking and pulling, Christina is deeply devoted to creating even more resources to help others experience BFRB recovery.

For more in-depth information about this year's Retreat, or to learn more about the Academy, visit ChristinaPearson.com

Christina shares, "Dear Ones! I'm totally looking forward to visiting with old friends, and meeting new ones at this year's Retreat. I cannot WAIT to see all of you! Now that Rex and I are settled in Colorado, we can finally do Retreats again!  Please feel free to call me with any questions, or to register over the phone at 970-697-9677.  

 

TLC is the only 501(c)(3) nonprofit with a three-point approach (outreach, treatment, and research) to end Body-Focused Repetitive Behaviors (BFRBs).  

Our goal is a world where BFRB sufferers are quickly diagnosed, effectively treated, and free from shame. Your gift to TLC helps your recovery while helping others. You can find out more about donating by clicking HERE.  You can also learn more about treatment and resources for Trichotillomania by visiting HERE.

July 15, 2015 — Andrea Carlson

Trichotillomania - A Mysterious Hair Pulling Disorder

Trichotillomania is defined as a disorder in which a person pulls out their hair.  The hair is often pulled from the scalp, eyelashes, eyebrows, underarms, beard, chest, legs or other parts of the body and varies in severity and location for those who suffer from it. Trichotillomania is currently defined as an impulse control disorder and is being conceptualized as part of a family of body focused repetitive behaviors, or BFRBs for short. 

 

Although many sufferers of Trichotillomania have had success in becoming "Pull Free" (PF), Trichotillomania is still very much a medical mystery.  It is estimated that 6-12 million people in the United States alone suffer from this disorder, many of them in silence. 

 

There are a variety of online and local support groups for those suffering from Trichotillomania.  It helps to connect with others to see what remedies they are using to combat Trichotillomania.  Within these groups, friendships are developed and bonds are made.  Because Trichotillomania is, in my opinion, a very misunderstood disorder, those who don't suffer from it oftentimes have trouble relating to it.  Within these groups, no one is a stranger to Trichotillomania, and challenges and triumphs are shared and celebrated.  I belong to a few private groups online and they are listed as follows:

 

 

https://www.facebook.com/groups/TrichotillomaniaSupportWorldwide/

https://www.facebook.com/groups/christiantrich/

https://www.facebook.com/groups/bfrbsupport/

 

 

The above groups are private and none of your information is shared outside the group.  If you want in, just simply send a request to join the closed group and your wish will be granted.  The admins in each group are there to help, and new members are always welcome. 

 

I wrote an article a while back about the effects Trichotillomania has on one's self-esteem.  As someone who has grown up with this disorder, I'd like to point out that around the age of 12, I began to feel the ripple effects of the long-term hair pulling I had done since I was 2 (or thereabouts).  Without any eyelashes or eyebrows, I looked different than the other children.  Fitting in among the masses is such a ridiculous goal, but imperative nonetheless during adolescence, and when you stand out for reasons you cannot explain, it makes life very awkward.  Without eyelashes and eyebrows, I felt I wasn't pretty, and it affected me adversely. I didn't feel good about the way I looked, therefore, I felt like I didn't measure up. 

 

Another, and possibly more debilitating form in which Trichotillomania affects people is through a cycle of self-loathing.  In many cases, those who suffer from Trichotillomania pull their hair in their sleep, or when they are in a state of mind where they are not aware of what they are doing.  That has happened to me from time to time, but the majority of the time, I am fully aware of hair pulling when it is taking place, but I am just simply unable to stop.  Those who have never been afflicted with Trichotillomania might say, "Why not just go for a bike ride or do something to keep your hands busy?".  If only it were that simple. :)  People who suffer from Trichotillomania will often have urges that result in a pulling spree, thus not allowing them to be able to stop and change direction.  From an outsiders perspective, it does seem easy to simply divert; I understand that.  But I am here to tell you it is just not that simple.  Regarding the aftermath, once a hair puller has finished a pulling spree, they will experience guilt for pulling, followed by anger directed at themselves for pulling, and then of course, the look in the mirror to see the damage and the prayer right before the glimpse in the hopes that its not that noticeable. Hair takes about 4-6 months to grow in, but all that hard work of growing and not pulling can be unraveled in one 30 minute pulling spree, which leaves behind a feeling of hopelessness, followed by a bout of depression and finally fear that this will never be resolved.

 

It is a vicious cycle to say the least, and I dislike Trichotillomania very much.  But in all of the darkness and shame Trichotillomania brings it's sufferers, I'd also like to highlight some of the things I feel Trichotillomania brings to it's sufferers that make these special people so unique:

 

1. People who suffer from Trichotillomania tend to have a higher tolerance for misguided and uninformed people, and have learned to project kindness and grace, even in the midst of another person's hurtful behavior. 

2. Those who suffer from Trichotillomania may be hard on themselves, but they are tough-as-nails warriors that don't give up on themselves either. 

3. People who suffer from Trichotillomania won't ask you silly questions, such as, "Why do you do that?" or "Doesn't that hurt?".  They will accept you for who you are, just as you are. 

4. People with Trichotillomania are loyal and will go out of their way to help lift others up. 

5. People who have Trichotillomania are especially brave and will often put themselves out there to protect something or someone else.  

6. People who suffer from Trichotillomania are very intelligent. Oftentimes, they just have trouble placing their thoughts in order and taking action. 

7. In spite of their struggles, or possibly due to them, those who suffer from Trichotillomania have learned to appreciate the little things in life, such as a quiet moment, a day without pulling, nature, a good movie, time with loved ones, etc.

8. People who suffer from Trich have an ingenuity about them that is rare in this world.  They wear their hearts on their sleeve and, although they may get hurt from time to time, they have a fighting spirit that stands them up for one more round every time with all the grace and optimism a true winner can muster.

 

In closing, there is no question that Trichotillomania creates destruction, self-loathing, anxiety, fear and depression for it's sufferers.  It is a challenging and frustrating disorder with no known medical cure. However, through the trials and tribulations, Trichotillomania also offers up a few gifts along the way; gifts we may have never harnessed the power of, had we not been afflicted with Trichotillomania.  When we embrace those gifts and work toward self acceptance and self love, it is then that Trichotillomania becomes smaller and less and less a part of our life, and people who suffer from Trichotillomania become empowered to be who they are, just as they are.  

So, here's to a good fight, my fellow trichsters.  Shine on!

 

 

 

 

July 17, 2013 — Andrea Carlson

How to Keep Your Wig From Slipping

Hi there Fellow Wig - Wearers,

I was thinking of you all this morning and thought I'd share a little tip I learned.

Whether you have some hair, a little hair or no hair under your wig, this can help hold your wig in place if you are experiencing slipping of your wig, meaning your wig is being pulled back away from your front hairline. 

1. A wig cap is a great way to help keep your wig in place and prevent it from shifting.  A wig cap is also useful in keeping your wig clean, as it serves as a barrier between your wig and your natural hair or scalp. Wig caps come in different fabrics and colors so be sure to choose one that is a good fit for you and one that will match the color of your wig.  For example, if you have a blonde wig, I recommend wearing a light colored or blonde wig cap.

2. If you have some of or even a little of your natural hair under your wig, you can utilize wig clips (also referred to as toupee clips). Simply sew in one small wig clip on the inside of each ear tab on your wig.  Once you have your wig in place on your head, reach underneath the wig and close the clips sewed onto each of the ear tabs to your natural hair underneath your wig. 

This method will also work if you do not have any of your natural hair under your wig.  You can simply utilize the wig clips to secure the wig to the wig cap, rather than your natural hair to hold your wig in place.

I hope this information has been useful to you.  

 

Shine on! 

 

Andrea

 

May 05, 2013 — Andrea Carlson

You Have The Power!

Always remember that YOU get to decide your worth and your success!

Others may say things to try to hold you back, but don't be discouraged. Whether it be losing weight, landing that perfect job, designing a career path for yourself or just doing something healthy for yourself.... You get to decide. Don't ever forget that.

You harness more internal power than you realize... Use it and magical things will happen! :)

April 25, 2013 — Andrea Carlson

A Note For You...

Hi Friend, 
 
I personally have lived with Trichotillomania for almost 38 years. WigStudio1.com was founded to assist all people suffering from all types of hair loss, but if you happen to be struggling with Trichotillomania, please know that you are not alone.  It is estimated that 6 - 12 million people suffer from Trichotillomania in the United States.  
 
My hope by creating this online store was to offer not only wigs, hair extensions and hair pieces to help assist with covering thinning or bald areas, but to also offer support and encouragement.  Whether you suffer from Alopecia, Trichotillomania or hair loss due to chemotherapy or a medical condition, we are here to help. :)
I imagine for someone with a full head of their own hair, buying a wig would be fun!  But when you are buying one because you need to cover something up, all you really want is your own hair to just grow in.  I understand that.  In fact, up until a few years ago, I wouldn't even consider wearing a wig.  Now I have a large collection of my own that I wear all of the time!  I love them now!  I found that putting a wig on made me feel beautiful again, and when I felt that way, I was more productive on every level everyday.  I had the hair I always wanted... instantly!  And I love that!  
 
You are bold... You are beautiful.... You are fearless!  You deserve to feel your best.   
 
I look forward to helping you find a style, whether it be a wig, hair extensions or a beautiful hair piece to compliment your existing hair, to help you feel beautiful, until it is your time to heal.  Visit me at www.WigStudio1.com.
Shine on, Ladies...
Andrea